My little rant about fear last week felt good so I think I’ll throw
another post out into the void.
So what have I been
doing during my silent period? Well, generally dealing with my
chronic heart issues. For those who don’t know way back in August
of 2018 my heart suddenly went into ventricular tachycardia while at
work. This occurred literally around midnight with my heart rate
reaching over two-hundred beats per minute.
Stupid me didn’t
understand what was happening so for about half an hour I walked
around trying to “shake it off.” Luckily for me I work at a
hospital so I eventually went to one of the nurses in surgical
recovery and had my blood pressure taken. It was normal, but when she
felt my pulse I was forced to lay down on a gurney and was quickly
wheeled down to the ER.
That began a several
month long adventure that included several stays in the cardiac
intensive care units of two hospitals, four cardiac ablations, and
the discovery that I have a genetic mutation of the heart muscle.
After the fourth
cardiac ablation, which was my first down at the Medical University of South Carolina in
Charleston(MUSC) I got my life back. And with a few exceptions due to
a couple of bouts of atrial fibrillation that required their own
ablations, I’ve been doing great for someone with my condition.
That began to change
in April of this year. Seemingly out of nowhere I had about
two-minutes of tachycardia that my pacemaker/defibrillator, actually
it’s a CRT-D, was able to get under control. A small period of
panic ensued but after several phone calls down to MUSC everything
seemed back under control.
Well, I had another
episode of tachycardia again in August, which was again quelled by my
CRT-D. While this episode was about the same length and severity as
the one in April it raised a lot of red flags for my docs down in
Charleston. After a checkup down there in September, a special test
was scheduled for the first of October to determine what exactly was
going on. It was supposed to be outpatient with me going home that
same day. No, that’s not how things unfolded.
The test was
scheduled for the first Tuesday in October but that Sunday I went
into a prolonged but “gentle” episode of tachycardia. My wife
rushed me to local hospital where I quickly informed them that I
needed to be sent down to Charleston. Namely for because the test but
also because that hospital had first shot at treating my condition
and failed.
Probably happy to be
rid of my sarcastic ass, they loaded my up into an ambulance and sent
me to down to MUSC. That ride is a whole other story in itself but I
will not delve down that rabbit hole right now.
To sum up the first
week of my October hospital stay is easy. By the time I arrived down
in Charleston my heart was mostly behaving itself again. I had the
test as scheduled on Tuesday and it was inconclusive. I was
discharged mid-morning that Thursday and sent home because the docs
saw nothing to fix at that moment.
The very next day,
Friday, my heart went to absolute shit by mid-morning. I was having
near constant episodes of light tachycardia with my CRT-D pacing me
out of them. I say “light tachycardia” because my heart rate
never exceeded one-hundred fifty beats per minute. But what did scare
me was when my CRT-D paced me out of the episode it literally felt
like a kick in the chest.
Yes, I should have
headed back down to some ER immediately but since my heart had spent
the previous week acting all normal I held off until mid-afternoon.
It was around one o’ clock in the afternoon when I finally started
making some phone calls to the docs in Charleston.
Like the ambulance
ride earlier that week, that’s a story all by itself. Boiling it
down to the fundamental points the MUSC nurse that called me back
around four o’ clock said it would be best if I came back down to
their ER.
I went okay, told my
lovely bride to saddle up and were driving south after I packed a
small Go-bag. The entire drive down I was going into tachycardia with
my CRT-D kicking me in the chest to bring the heart back under
control. Truthfully, I expected the tachycardia to suddenly stop at
some point, but it didn’t and I walked to the ER reception desk and
was greeted by the nurse manning it highly skeptical to my claim.
That was until she
hooked me up to an EKG and saw the tachycardia happening in real
time. Needless to say I was quickly rushed back to the exam rooms
where about five separate nurses and two ER doctors were freaking
out. A quick scan of my previous history strongly suggested that if
the tachycardia wasn’t brought under some control it would only get
worse.
Shit got so weird
that night in the ER the maker of my CRT-D’s telemetry people
called MUSC saying they had recorded over seventy episodes of
tachycardia that day and wanted them to get in touch with me.
Speeding up the
story telling a good bit, I was admitted again where I was the guinea
pig on a bunch of other medical tests and had copious amounts of
blood drawn for fifteen days. It was soon determined that another
ablations to control the tachycardia was not an option. My heart had
been scarred up pretty badly in my previous procedures, just a normal
side-effect of zapping bad cells that wanted to short circuit.
So, once again
jumping over a lot of detail, I was informed a few days later my only
real option was a heart transplant. Since my root problem was a
genetic defect in my heart cells and since I had about all the
ablations my heart could take I agreed. That is not before I
suffered through about thirty hours of abject terror thinking about
what I would have to endure.
After thinking about
it and numerous talks with swarms of truly awesome physicians, I
realized a heart transplant was my only option if I wanted to
continue breathing. The alternative being a slow slide to oblivion as
my heart went full short circuit. Not necessarily a painful demise,
but it would be highly unpleasant.
Okay here are some
of the details that I skimmed over:
My heart is
under control right now due to the new drug they have me on. It’s
called amiodarone, and it was called by one of the docs the “best
drug they have and the worst.” The side effects can be severe in
both the short term and the long term. Adding to my equation is that
I’m on the maximum dose of four-hundred mg.
While I am
fully on the heart transplant list I’m currently at Status Six.
That means I’m home and can return to work under certain
limitations.
During the
testing I learned that any new heart I receive will have to be from
someone of similar height, size, and blood type. Since I’m six
foot-five inches and a pretty big guy I’m going to be waiting for
a long time. Especially since I’m relatively healthy at this
moment.
If the
amiodarone becomes ineffective, or if I start showing signs of
progressive health failure, I will have to return to the hospital
and stay there until a heart becomes available. Some people on the
transplant list have stayed in the hospital way over a year before
getting a heart. These patients have used that time to learn a
musical instrument, take online college courses, or even play video
games. If I fall into that situation I’m going with then online
learning.
Yes, people
have died while on the list waiting for a heart.
Yes, I'm still
scared but there’s nothing I can do but play the cards I’ve been
dealt.